On Loss & Chronic Illness - Anger

Content warning for brief references to self-harm, domestic abuse and all variety of disablist nonsense.

I decided to provide audio for this in order to avoid the irony of post which is so long it might be inaccessible to some people who might benefit from it:


The perfect management of a fluctuating chronic illness is impossible. So long as the precise nuances of your body and brain remain unseen, you will overdo it. You may sometimes be over-cautious and do less than you could. And you won't really know what you've done until it hurts a lot more.

Beyond this, you sometimes do too much because there's something you want to do, or get done, or because you're frustrated, angry or anxious and you can't stand to stay still with that feeling.

When I first began to realise this – that things would not improve just by pushing and pushing – I was filled me with rage towards myself. I would swear at and curse myself out loud. I was disgusted with a body which refused to co-operate. I injured myself and made half-hearted attempts on my life. It wasn't that I was sad or disappointed in myself; I was livid.

At this time, I began talking to the man who would become my first husband. This person carried a hell of lot of red flags, but having tricked myself into ridiculous hope, I no longer trusted my instincts. One of these red flags was the fact that this man in his mid-thirties was angry all the time at pretty much everything, even with a teenager he was talking to on-line. However, I felt crap about myself, and this anger made more sense than the kindness and support of my true friends; I figured they must be deceived about me, while he was not.



Our culture isn't great when it comes to extreme negative emotions like sadness or anxiety, but it's pretty atrocious when it comes to anger. For one thing, there is a profound social hierarchy in who is allowed to express anger. Rich white powerful men are allowed to shout at and mock their colleagues in public and yet remain in charge of us all. Another can physically assault his subordinate and maintain much of his public favour.

Women are taken much less seriously than men if they show anger and while many stereotypes about women of colour are about being submissive and demure, the first sign of anger can flip this on its head; the eager-to-please East Asian becomes the Dragon Lady, the submissive Muslim stereotype becomes a terrorist and so on. Our culture is particularly wary of angry black people, particularly black men. This makes sense in terms of our imperialist history; it's a good idea to be afraid of anger in people you're trying to control or crush.

Disabled people are another category who are not supposed to be angry except in very specific contexts: a young white man who has been physically injured during heroic activity (war, fire-fighting, police work etc.) is allowed to express anger if he channels it into successful rehabilitation. Almost anything else and you're heading into disabled villain territory.

This is one reason that I've struggled to write about anger and loss. Anger is a natural stage of grief and recovery from any kind of loss and trauma – it's okay for anyone to feel angry about their experiences and the injustice in the world. In fact, to be angry about the hurt one has experienced is often a first step in valuing oneself and one's safety.

For people with chronic illness the problems are fourfold:

1. You're not supposed to be angry. When people admire a sick person, they say, “They're really suffering, but they never complain!” Meanwhile, you're supposed to respond to those around you with gratitude that you're being looked after (even when they're not looking after you) – you're certainly not supposed to get angry with them. If you get angry, you might be left entirely on your own when you literally can't survive without help.
   
   There are some situations where showing the slightest frustration with someone who has power over your life – a medical professional, an employer you're negotiating access with, someone from the benefits agencies – can have you pigeon-holed as a trouble-maker. This is especially the case for people with mental ill health, who can even acquire new diagnostic labels for arguing with their doctors.


2. Competing with fear, anger might be the most exhausting emotional state to be in. Your body prepares for physical conflict, your heart races, your breathing becomes shallow, your muscles tense and blood is diverted from normally essential things like digesting food. Anger can make a healthy person feel pretty sick. For sick people, the physical tension of anger can cause a lasting increase in pain. It can cause gastrointestinal symptoms that go on for days. And while sadness drains energy like a hole in a bucket, anger pumps it out of you.


3. In chronic illness, anger often has no place to go. Sometimes, you're literally stuck in a room either with its source or completely alone, with no way of addressing or venting it. Sometimes it's impossible to even talk about it or write it down. Gobble gobble gobble.


4. As well as the anger associated with the multiple losses involved in chronic illness, we have plenty else to be angry about. Disablism, discrimination, poor access, crap from benefits agencies. Unhelpful, sometimes cruel remarks and behaviour from family and friends. Plus misdiagnosis, medical bureaucracy, abuse and negligence are immensely common – not because doctors are a bad bunch, but because having a chronic condition means we see dozens of them over the years and are bound to encounter the occasionally horror. Trouble is that horrific doctors can cause lasting damage. 

A particular trouble with disablism is that often we experience injustice which simultaneously insults us personally and denies our loss. When the DWP decides we can do things we can't, when folks express envy that we don't have to go to work and when politicians talk about encouraging us to do the right thing, they're not only implying dishonesty, laziness or other character flaws on our part, but they are denying the limitations we have and the things we've lost. For people with conditions that involve suffering, they are denying this suffering. This is one reason why, unhappily, a lot of disability politics has gone Tragedy Model over the last six years, with folks arguing for their basic rights, not on the grounds of the intrinsic equality of all people, but on the grounds of compassion.

A cousin was telling me about a colleague who had a condition a bit like mine, although much less severe – this lady was still in full time work, although it was an increasing struggle. My cousin had explained to his colleague about me and my medical history. He said, “I told her, it must have been so much easier for you. She's in her forties with a job, a couple of children and a mortgage, whereas you were only fifteen and didn't really have anything to lose.”

Thus I find my entire identity reduced to that of sick person – all I ever was or am or will be. This happens quite a lot. In hospitals and doctor's offices, I am a collection of symptoms. I've currently got my ESA form-filling file open (not for fun - I have a form to do); 6000 words about the intimate details of my daily life. And it has nothing about me in it, no whisper of who I am, what I care about or what I'm good at. 

In the media and the mouths of politicians, folk like me (especially those of us who have few formal qualifications and have never had a full-time job) are talked about as if we are blank people without interests, skills or experiences - either to be filed neatly out of the way (those who need the most help) or to be pressed, moulded and trained up into real coloured-in people (ordinary hard-working families).

The temptation is to respond to this stuff with protests of what might have been – the dominant Tragedy Model narrative; the way we are taught to tell our stories. My cousin's colleague wasn't going to lose her children and was unlikely to lose her job – things I had lost before I even had a punt at them. I might have had a glittering career, made a profound contribution to the world with whatever path I took, earned a fortune and been someone my cousin boasted about as opposed to someone whose story can be shared as an example of a non-life.

But that's a game I'm bound to lose. For one thing, it's nonsense;  I would have had a very ordinary life, working jobs I liked and jobs I didn't, with spells of unemployment in between. I know healthy people who travel through life clutching onto a narrative of what could have been if only they'd been in the right place at the right time, and it's both sad and deeply unbecoming – there's always the implication that such people are somehow better than the average-wage life they actually have, thus somehow better than their colleagues, their friends and neighbours and most certainly people like me.

It's also a story of disabled life which focuses on the contrast with the non-disabled life which never happened. And although I'm writing about loss, I am not prepared to escape the identity of sick useless person who would never have amounted to anything by signing up to be a non-disabled person trapped inside the life of a disabled person. 

I often see people with chronic illness on social media declare that illness destroyed or ruined their life, stole their youth or future - sometimes in the first person plural; our lives, our youths, our futures. I'm very lucky this didn't happen to me. Illness helped shape a life which was different to the one I had expected. This life features a degree of ongoing loss and frustration because I am a sick person living in a disablist world. 

When I was fifteen, I had a hell of a lot to lose and I lost a very great deal. But I'm far more upset now by what I'm losing as a thirty-five year old. I have friends and family I hardly see - right now my 92 year old Granny is in a bad way and I'm not well enough to visit. Weeks pass when I can't leave the house and there are all kinds of social and cultural events I can't join in with. I'd like to have a dog.

I have acquired talents, expertise and experience which I am only able to put to limited use. Right now, I don't fantasise about having more money, but I deeply envy people who have jobs that fulfil them and make them feel useful. I know full well – because I work hard myself – that no activity is universally pleasurable and fulfilling. But I envy the opportunity to spend more than a few hours, randomly distributed across the week, doing what I do well.

And this is okay. I can and do live with this in much the same way as I live with the loss of loved ones I long to talk to again. It's a recurring pang, not a bleeding wound. It doesn't ruin my life.

However, I struggle when this loss is denied.  

In social justice circles, I often see arguments in favour of anger. The thinking goes like this: women and minority groups are discouraged from showing anger by the very same culture which gives us all kinds of reasons to be very angry indeed. David has written about it just this weekend. Learning that it is okay to feel angry can be a first vital step of our resistance.

This is sometimes extended into a command to get angry and stay angry, to express anger. Which is all very well if you're lucky enough to be able to channel your anger into something useful and productive without harming yourself or others. It's pretty hopeless if you're lying in bed, unable to do anything yet unable to sleep or rest properly because you're seething with rage.

So I have a different philosophy. It is okay to feel anger. Anger is a natural and important response to loss, trauma or injustice - if you try not to feel it, you're likely to run into trouble.

But having felt that anger, it really would be wise to seek out a way to open that clenched fist and let it go.

Another problem with anger – and its sister, guilt - is that it demands legitimacy. We might feel sad about lots of things, and sometimes feel foolish for feeling sad, but with anger, we can repress it because we think we're wrong to be angry, or get lost in it because we have a right be angry; someone or something deserves our anger, and us being angry is just.

But other people don't live in our hearts; nobody is punished by our anger or comforted by our guilt.

Meanwhile, the behaviours we adopt to cope with anger can be habit-forming and eventually dangerous. Various forms of explosive behaviour can cause an addictive release of endorphins, including things we do to ourselves like self-harm, starvation or over-exercise, as well as things we might do to other people and objects. Ranting on the internet at nobody in particular can be a fairly benign way of releasing all this unhelpful adrenaline, but it can do the same thing.

All angry behaviours are likely to escalate. You know that thing about how swearing is a great painkiller? Well, that's true, but only if you don't usually swear and you're not often in pain. If you're always stubbing your toe and responding with elaborate blasphemy and curses, they won't be working too well – you have to swear harder, louder and more disgustingly, in order to have any effect.

Behaviours don't actually have to feel good in order to become habits; they just have to provide relief.  

This is why Twitter is as it is - of course, Twitter is awash with love and kindness, but there are folk about, of all stripes, at all points on every political spectrum, who are permanently pissed off. Many of those people have something very real and horrible to be angry about, but without a break from it, it's only going to get worse.

When I used to belong to illness-specific support groups, I saw the same; some folk were angry and supported one another in anger to the extent that they believed that their illness was by far the most stigmatised, that people without their diagnosis couldn't understand them, that some people with their diagnosis were giving the others a bad name by having different kinds of symptoms and limitations. Some wholeheartedly believed that other people's willful neglect was keeping them ill; that if only enough attention was paid to their condition, a cure would have been found years ago. None of these people had had an easy time or been treated with the full respect and care they deserved and for a few, the actions of others had undoubtedly damaged their health. However, the belief that other people have ruined your life (because such people did see their lives as ruined) is pretty much impossible to resolve.

It's going to be recurring theme in these posts about loss, but the disability rights movement helped me stop being angry with myself. Understanding the socially-constructed nature of disability doesn't stop me wishing I had less pain and more energy, but my body is off the hook in some major respects: I would love to be able to walk about, but the mere fact of having to move around on wheels should not mean I'm profoundly limited on where I can go and what I can do. Meanwhile, to operate with any sense of blame and innocence when it comes to ill health is to play into hierarchies which oppress us all.

It helped a lot when I stopped being around angry people. To avoid other people's anger altogether would be to avoid anyone in pain or having a crap time and I don't mean that at all. But for a long time, I was attracted to misanthropes. I didn't hope for love (or trust it, because it was always there somewhere) so I sought toleration; I was attracted to people who hated everyone but begrudgingly tolerated me. It felt like the safest kind of special status. Thus I lived with domestic violence for over ten years, with someone who was even angrier with me than I was.

However one great lesson I learned from the aftermath and recovery from that is about trauma. Trauma victims and survivors frequently blame themselves for what they've experienced because the psyche abhors helplessness; it is far easier, psychologically, to take on responsibility for things that were far beyond your control than to admit to yourself that you had no real choice. This is evolution; organisms that maintain undying faith in their power to avoid or escape perilous situations are more likely to survive.

Of course, in adult abusive relationships, there are choices, but greatly diminished ones. In illness - also a traumatic business - there are choices, but again, these are diminished. You can't see what's ahead. You can't stop the world. You can never avoid risk. Your health is complicated and sometimes one aspect must take a hit on behalf of another. Some things matter more than health.

But most of all, again from listening to others on disability rights, I learned that my health is a morally neutral fact. If I am less well, it matters only as much as it matters to me.  I can only let anyone down if I make a promise and choose the day before my presence is needed to experiment with the unicycle. This is not something I often do.

Managing anger with things outside myself is all about identity. We talk about identity a lot, not because it makes us feel special or interesting, because these are things others reduce us to and we wish to resist this reduction. Disengaging from these identities, (insisting, "I don't consider myself disabled!"), just doesn't work for most of us. However, because we find ourselves reduced to a disabled person, a wheelchair user, a benefit claimant, a psychological services user and/ or a person with chronic illness, it's important to hold onto everything else we happen to be.

So, there are three things I try to remember about all the crap we receive as people with chronic illness:

1. I'm not alone in this experience, even if I'm alone at that moment in time. Someone else has been through this. Some experiences (like having trouble with benefits agencies) are almost universal. Some experiences come down to tremendous bad luck. Some people are victimised because of a combination of attributes which our culture struggles with, e.g. having a mental illness and a physical impairment, and being working class, a person of colour, LGBT, fat etc.. 


2. This crap is all about other people, fear and power, and the systems they create. Discrimination is very rarely motivated by conscientious belief. The nonsense disabled people have from benefits agencies is not about genuine mistrust (although that's how it manifests) – they simply wish to maximise the number of people who, overwhelmed or disheartened, will give up before they get the correct award. Politicians create narratives about hard working tax-payers' and benefit scroungers in order to distract from the origins of our economic problems. Right wing politicians are sometimes very good at advocating for their constituents with benefit problems – people can and often do believe two things at once.
   
   Street harassment, the bullying remarks of colleagues, family and other acquaintances are mostly about power and fear. These people are bullies (whether they do it all the time or once in a blue moon) and the issue is about them, their insecurities and anxieties. They say stupid things relating to our health because they can - because we live in a culture which treats disabled people as charity cases, demanding proof of our deservingness, legitimising speculation about whether our impairments are exaggerated, badly managed or taken advantage of. 


3. This stuff is never about who we are. None of us will never be everyone's cup of tea, but people who know and like us will, of course, be largely disinterested in our health, how we manage it, if and how much we work. They will be interested in us, what we're interested in, what we're good at, what we're passionate about. And when I do my own thing, exercise my skills, listen to the music I love etc., I am not anything like the person those bastards want me to be.

None of this is to minimise the scale of injustice – all these things applied to the disabled people entering the first gas chambers, along with everyone else who ever ended up being abused, tortured or killed for some aspect of their identity. The fact that prejudice is rarely authentic – that is, it is rarely arrived at through any kind of conscientious rational thought process – doesn't make it any less dangerous. This is in no way a sticks and stones argument. Sometimes we have no choice but to fight this crap. Other times we have to get away from it as soon as possible.

However, the more we keep hold of ourselves - our best complicated selves with our passions and talents and foibles and that birthmark that looks like one half of Jedward (but which, you wonder, but which?) - the better equipped we are to escape being utterly consumed by the rage.

Robin Williams, narratives of depression and suicide.

In the month since the death of Robin Williams, there has been a lot of social and mainstream media discussion about depression and suicide. This is a good thing. The more we talk about it, the more likely that we might move towards a position where mental illness is seen as the commonplace yet debilitating experience it is, the more likely we are to better manage these conditions as a society and the greater the hope that meaningless deaths and the devastation they cause can be avoided. 

But as with any move towards greater awareness, there are a lot of messages floating around which aren't necessarily helpful, which simplify illness and risk re-enforcing assumptions about mental illness. Emma wrote about the simplistic message that folk just need to tell someone, and I want to talk about other dominant narratives of suicide and depression.

The world at large cannot know what was going through Robin Williams’ mind when he decided to take his life. We know about some sources of stress in his life (a cancelled show, potential bankruptcy, a Parkinson's diagnosis). We know that he had bipolar disorder and a history of alcohol and substance abuse. However, there is no neat story to tell – not right now and maybe never – about what he was thinking and why he did what he did. 

However, that doesn't stop us pretending there is. 

“This is what depression feels like.”

I’ve seen so many articles with this kind of title since the death of Robin Williams and you know what?  That’s not what depression feels like. My experience of depression isn’t exactly extensive – it’s probably about eighteen months, all totted up, but even I can tell you that it feels like physical pain, also numbness, also total emptiness, also like all the colours have been toned down, also utter blackness, also a menacing figure in the corner of the room, also complete indifference, also a bell jar and a black dog. Not all at once, you understand, but it changes.  Meanwhile, symptoms vary hugely between individuals; how much a person can do, how sociable they are, whether they're sleeping all day or not at all, whether they're eating all day or not at all, and so forth. 

I think it’s immensely important to talk about our personal experiences of depression – the biggest barrier for people seeking help is the fear of judgement and misunderstanding, the belief that they are the only person who has ever felt like this (or at least the only person they know). So it really is great that people have the courage to write about their darkest experiences. 

However, framing anything as a definitive account (perhaps especially when it’s beautifully written) plays into the idea that this is a condition which looks one particular way. That readers of such accounts can know exactly how Robin Williams, or any person with depression, must have felt.  

This is especially dangerous when it comes to perceptions of functional impairment; the idea that someone with serious depression can't get out of bed, or will withdraw from the world altogether.  There's a danger of assuming our friend who is having dark thoughts but still making it into work each day will be just fine.

Fortunately, it's possible to be both respectful and compassionate without having to know exactly how a person is feeling at any given moment in time.

#depressionlies

Yes, depression lies.  Depression can make people believe things about themselves, their lives and other people which are not true.  A truly wonderful person can come to hate themselves because of this trick. A very fortunate person surrounded by love and material comforts may hate their life because of this trick. 

But.

Some people experience depression for random chemical reasons, as with post natal depression, but many others have depression caused or compounded by abuse, trauma, discrimination, isolation, physical illness, poverty, heartbreak, bereavement and very often, a combination of these things.  Meanwhile, depression makes a person more vulnerable to negative life events, to poverty, to exploitation, to losing supportive relationships and to other physical and mental health problems. In other words, people with depression are likely to have some very real problems in their lives. 

And people with depression are not believed.  It is much harder for people with mental ill health to get the benefits they’re entitled to.  When someone with depression takes a physical symptom to the doctor, it will often be put down to depression. When someone with depression takes a criminal case to the police, they may be told that they are an unreliable witness. When someone perceived to have a mental illness speaks out about politics, an elected official may advise them to "refrain from commenting in the public domain" as if a diagnosis discredits a person completely. 

People who live with these experiences often wind up with problems trusting themselves, rendering #depressionlies a far more complex message than can be done justice to in 140 characters. 

Meanwhile, all chronic illness lies.  Chronic pain is a lie – the point of pain is to warn you of injury or illness, so you can respond accordingly, recover and avoid whatever made you hurt in the first place. Chronic pain says that there’s a crisis now, when (often, at least) there’s no crisis at all and nothing you can do.  Chronic pain tells you to stay still when you need to move and to move when you need to stay still.

“People don’t die by suicide. They die of depression.”

Suicide is a physical act, not an internal experience. People take their lives in a great variety of circumstances. One person might plan their death a year in advance.  Another person, in the absence of any mental health problem, finds themselves in a difficult situation, panics and departs.  Suicide is not, as one commentator has it, a symptom of depression.

Suicide is a physical act at one particular moment in time - this is one reason why speculating on why Robin Williams, or any other person, died, is ridiculous. All these deaths tell us is that, at one particular moment in time, a person intended either to to gamble with their lives, to inflict severe self-injury or to end their life. Sometimes people die and those left behind have no idea what was going through their minds. Sometimes a person gets very drunk or stoned or desperate or angry and makes a dreadful mistake which would not have occurred to them the following day. The fact that a deceased person had depression doesn't mean they were in complete agony for months leading up to this event. These are tragic deaths.

I feel we desperately need to be honest about this because suicide is highly preventable. One of the great tragedies of suicide is the fact that, in very many circumstances, external events might have disrupted the act. Speak to people with a history of suicidal depression and you frequently hear stories of rescue; this event, this person, this pet, even a personal realisation that struck them at the right moment saved their life. 

Depression is not a simple condition and occasionally, people don't get completely better. But it's often simple kindnesses, responsibilities and thin rays of hope which enable people to survive the worst periods and regain some quality of life. 

Meanwhile, there is a hell of a lot we can do, socially, culturally and politically to help reduce the impact of depression on people's lives, so far fewer people ever get into a position of danger. Both depression and suicide are hugely influenced by sociological factors (including the way that famous suicides are reported).

Describing suicide as if it is something that just happens to depressed people is doing no-one any favours.  It patronises people with depression and renders the rest of us helpless.

Fortunately, we're not.

....

If you're in trouble right now, these links may be useful:

Contact The Samaritans

Mind Directory: Talking Therapies/ Counselling 

Who is manipulating us on social media?

It is Apple or Lenovo? A gorgeous white man with dark
hair and glasses clutches his mysterious laptop.

When Google’s search results became personalised, anxious voices were raised about the danger of keeping individuals within their own happy filter bubble, where they only saw things in which they had an established interest, only heard opinions of which they already approved, only came into the presence of people like themselves.

Similarly, when last month it was revealed that Facebook had been conducting unethical psychological research on its users, people were outraged that they could be so manipulated. Laurie Penny said

“Nobody has ever had this sort of power before. No dictator in their wildest dreams has been able to subtly manipulate the daily emotions of more than a billion humans so effectively." 

And I’m thinking, what about us?

Now, I can’t tell you how big a fan I am of social media – without it, my universe would often shrink to the size of a bed. However, the biggest danger of social media is how, quite unconsciously, we influence and are influenced by one another. None of it is terrifying but - just like bearing in mind that all our free tools belong to commercial interests with American cultural values - this is stuff we need to think about.

On-line and off-line social behaviour differs in three main respects. The first is by far the most explored; with fewer clues to social status and identity, people talk to others with an ease that doesn’t occur in the same way off-line. This is mostly a good thing. Disadvantages are obvious.

The second is that on-line, a person may socialise with a wide group of people at any time of the day or night, in almost any physical location. Things can get intense, which isn't always a problem - a lot of information can be exchanged and friendships can fuse fast. Yet equally, this social world can become psychologically inescapable. It can be hard to leave alone, whether you’re in the middle of a great conversation or a raging argument. It's in your pocket. It sleeps beside you at night.

The third is this world’s typical reliance on one central and cohesive identity for each person. Some people have a few different on-line handles, each used for a different purpose. But most people have just one. Off-line, a person may be one version of themselves with work colleagues, perhaps another with the boss, another on the train, at home, with the in-laws, at choir practice, in the football team and so forth.

In the olden days, the internet was yet another place to be where you could be another, often freer or more authentic version of yourself. It was a place marginalised people flocked to, in order to be around other people like them and to find acceptance of the versions of themselves (as members of sexual minorities, disabled people, crumhorn obsessives etc.) that wouldn't be made so welcome elsewhere. Facebook, in particular, encourages us to consolidate all our identities into one definitive self. 

We need to be aware of this and how it affects us and I don’t think we generally are.

Almost the first people I found on-line as a teenager were other young people with my chronic illness. This was a wonderful thing but after a while, I came to terms with my condition and grew disillusioned with the culture of these groups. I don’t want to tar all illness-related support groups with the same brush or slander my friends who are still part of these groups - most of my experience is with particularly vulnerable young adults. But there are groups, or cliques within these groups, which work like this:

Everything people talk about is placed in the context of illness. Every positive experience must be qualified with the cost in symptoms (probably spoons these days) – this turns a lot of positive experiences either neutral or negative; I had a lovely day today but I will now have three weeks of raging agony. Other people’s positive experiences can be celebrated but not without regret; So glad you had a lovely day; if I did half as much, I would probably collapse and die. Everything that goes wrong in life is put down to or made very much worse by illness. Outsiders can’t possibly understand.

This is a caricature, of course, and it’s very important to recognise that people who edge in this direction are not especially morbid and self-obsessed. It’s all about isolation and belonging. Folk are isolated and vulnerable to varying degrees but have found a group to which they can belong. So they cling onto that, imitating one another’s behaviour and constantly reasserting their qualifications for belonging: I am one of you, I am one of you. Did I mention I am one of you?

It’s a strong example because the common ground is very specific. However, I've seen something like this in pretty much every on-line community I've wandered into since, whether creative communities, sceptic or geek communities, political or egalitarian groups. 

Political campaign groups are particularly at risk because of the combination of passion, urgency (things must change – lives are at stake) plus the issue of public opposition. Any social media campaign will meet with dissent – Blogging Against Disablism Day has a very broad remit, more a carnival than a campaign, but still meets a few voices of derision every year. 

Campaign for something specific, something counter to the status quo or government policy and there are going to be objectors. It may even be that most people in the world basically agree with you but don't care enough to be involved - objectors care enough to let you know about it and often in abusive terms (even if it's about the faces on our banknotes). It can very quickly feel like the enemy is everywhere. This adds to a sense of isolation and increases the need to feel safe and secure within the group. 

And again, the three big difference between on-line and off-line worlds come into play:

My fingers on a keyboard. Photograph by Stephen.

Relative anonymity as well as - I think, more importantly - geographical and psychological distance allow arguments to rage. I've seen trolls, but far more often I see two people who have the same objective abandon basic civility over one small contested matter. I'm guilty of this myself. 

Someone can campaign from the moment they wake up in the morning until they go to bed at night. They might be doing many other things as well, but there’s less likely to be a set time for this activity, after which they leave it alone. Without carefully managed separate accounts and a will of steel, it is difficult to socialise while staying clear of politics. There are rows in grass roots meetings in the village hall, but everyone goes home after an hour or so. 

Having a single on-line identity means that everything feels personal. It’s more difficult to differentiate between an attack on your views and an attack on your person. And then there’s personal branding.

When I first started blogging, I quickly saw that the way to get the most hits, comments and links was to be as consistent as possible; blog about the same kind of thing, or different things but from the same angle. I resisted this, not for any noble reason around authenticity or being true to myself. It’s just that this blog very quickly became a tremendously useful vent and I wanted to  use it however I fancied.

However, there was and is - now more than ever - validation to be had in consistency. There are times when I've had a spell of writing about the same kind of thing (usually gender, sexuality or disability) and it is during these times that I get the most hits, the most links and the most retweets. This naturally drives me to do more of the same. These are also times I have felt quite lonely. After all, I am not all about disability, or gender, or sexuality. Meanwhile, people agreeing with you - worse, simply retweeting or showering you with "likes" isn't engagement. It's tremendously gratifying, it's very nice. It is, in fact, successful branding. If you're a business or someone who needs to sell themselves professionally, this is exactly what you need to aspire to in your professional life. But it's applause, not social interaction. You win fans, not friends. 

Folk always got hooked on applause and I see a lot of that. Not just blogging about the same thing, but tweeting on the same subject, backing that up with Tumblr, doing the same on Facebook. I see a lot of it in political movements, but I also see it in the way someone might tell the same joke over and over, the way some parents now keep a cameraphone between themselves and their kid, the way some people apply cynicism to everything other people care about and then feel compelled to apologise for any glimmer of enthusiasm. It's so tempting, to keep coming back to what works, but when we do that, we risk denying ourselves the opportunity to do something different; it's not who we are, it's not what others expect, we're going to confuse and disappoint them.

I strongly feel we need to avoid being one brand of person - partly for our own health and happiness, but also for the health and happiness of others. We're no longer in high school; we don't have to identify ourselves as the sporty one, the diva or the nerd. We don't need to identify our tribe, fall into line and hold on tight, forsaking all the other interesting people around. 

Believing we have the strengths that others attribute to us can be a confidence boost or it can set us up for a fall. Believing we have the limitations that others attribute to us can be a killer.