tag:blogger.com,1999:blog-10557263.post8221366697543531598..comments2024-01-26T10:20:37.836+00:00Comments on Diary of a Goldfish: Getadelt wird wer Schmerzen kenntThe Goldfishhttp://www.blogger.com/profile/15213378454070776331noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-10557263.post-12829819366063830962007-03-11T21:26:00.000+00:002007-03-11T21:26:00.000+00:00To "win" or not, legally involves vast sums of tim...To "win" or not, legally involves vast sums of time, stress, and money and expert advice which insurocorp of course has endless access to.<BR/> <BR/> The plight of injured in NZ can be somewhat deduced by visiting www.ACCforum.org where many "nasty" adversarial diffcult blighters place their opinions, me not being one!<BR/> <BR/> We have decided that tis far better simply to carry on as best we can and face such crap whenever it arises and the rest of the time strive to find ways to "escape the system" Fortunately my Supervisory caregiver, who incidentally has been such for a lot longer than 1998 and was so ten years before I got around to marrying her has developed a very nice career which brings in an income which we could struggle to live on should things go really belly up. Role reversal her out working me a kept man? Actually it's called team work!<BR/><BR/>Don't weep for me, in my old age.<BR/> The adventures we have had have certainly, in hindsight given us some good laughs and made us we think, strong enough to survive almost anything.<BR/><BR/> We can say everything we have achieved has been our own doing anything else? well we pass that off as must have been despicable so and sos in a past life to deserve such in this Life is good, enjoy! <BR/> Sorry to overload your blog have posted a bit of stuff on mine such as it may be which hopefully may be helpful.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-3927998540717634692007-03-11T20:55:00.000+00:002007-03-11T20:55:00.000+00:00Thanks everbody.Charles and Fluttertongue, I guess...Thanks everbody.<BR/><BR/>Charles and Fluttertongue, I guess what you're talking about is those situations of <I>change</I> as opposed to the ongoing difficulties in living with chronic illness and pain. Although, as Seahorse points out, change doesn't stop taking place and the fluctuation of limitations is by far one of the most difficult things to negotiate, both personally and socially. I guess that is a slightly different, somewhat larger issue. I guess here I was focussing more on the acceptance of the mere fact we have limitations.<BR/><BR/>Rocky, your situation is terrible. Once again, it is my good fortune that I don't have to be constantly assessed. Just now I am a little nervous as I should soon get to meet my GP and despite my general confidence with this stuff, it does occur to me that he or she may never have met anybody with my condition, or never met anyone who is affected by this condition in the same way as I am, which is relatively severely.<BR/><BR/>However, when you have to face that kind of nonsense, the thing is to try and remember that it isn't personal; I would wager that nobody at the insurance company thinks you are lying or faking or anything, it is almost certainly the case that <I>they simply don't wish to pay out</I>. <BR/><BR/>It can be soul-destroying to have things written about you which attempt to discredit you as an honest person and cast doubt over the problems that you're having to work around on a daily basis. But it is all about money.<BR/><BR/>I don't know anything about the system in NZ, but I presume that there does come a point where you effectively <I>win</I>, and from that point on your brain injury will be legally recognised? I do hope so, and I hope that time arrives soon.The Goldfishhttps://www.blogger.com/profile/15213378454070776331noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-34266149579975300272007-03-11T18:25:00.000+00:002007-03-11T18:25:00.000+00:00I want to be more accepting of my condition, so th...I want to be more accepting of my condition, so that I don't push it, overdo it, try to do things that put me back in the realm of what people perceive to be normal. I struggle mainly with the limitations of other people's ability to use their imaginations - to imagine what it is like to be like this, which is different from empathy or sympathy. I also become a changed person when very fatigued or in pain, which those close to me have found very difficult. So HOW do you bridge the gap? And HOW do you arrive at a place of such acceptance and perception? Experience I guess.seahorsehttps://www.blogger.com/profile/04006649663400552591noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-16230565488450860082007-03-11T14:42:00.000+00:002007-03-11T14:42:00.000+00:00And I too, after only two cans of beer my Daughter...And I too, after only two cans of beer my Daughters recent 21st, spent the next two days in a near death experience still refuse to admit I lost count of the cans or exceeded my limit and had any form of Hangover! <BR/><BR/> Advantge of Brain Injury?<BR/>Economises on the amount of Alcohol needed to get a decent hangover.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-81965601952623357412007-03-11T13:22:00.000+00:002007-03-11T13:22:00.000+00:00i'm sure my pain is nowhere near constant enough t...i'm sure my pain is nowhere near constant enough to be termed chronic. In some ways this makes life more difficult, because half the time i am genuinely fine; then the rest of the time when i'm not fine, the people around me struggle to understand. Possibly the mistake i have made, and which i would warn anyone else against making, is pretending to be more fine than i am. There's such a temptation to do this so as not to upset other people, and yet in the long term you just store up problems for yourself. I recently agreed to go to the pub with some mates even though i didnt feel anywhere near well enough, then at the end of the evening was unable to stand up and walk home unaided. Everyone was so perplexed: "But you've been fine all day!" Erm, no, i've been in horrible pain and really dizzy, i've just been sitting here smiling for the sake of you guys... So yes, there is a limit to what people need to know. But there is also a limit to what they don't need to know.Radiohttps://www.blogger.com/profile/00138018633800587179noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-3799617785610201182007-03-11T13:00:00.000+00:002007-03-11T13:00:00.000+00:00The Importance of Being Earnest: OK, so I posted t...The Importance of Being Earnest:<BR/><BR/> OK, so I posted this on my blog, thinking that I was overloading this one.<BR/> However on rereading your post I think it rather excemplafies what you were saying.<BR/><BR/> As for chronic pain!<BR/> Well either the part of my brain which should sense pain has been virtually wiped out, or having been exposed to such since birth I have adapted to it and therefore am mostly "lucky?" enuff to know no different,and so don't it seems feel pain when I should, which enjoyably confuses experts, especially Dentists even more.<BR/> <BR/>Enjoy this real edited scan of a document by aperson trying to meet his "contractural requirements".<BR/><BR/>"While researching this claim "Chemical Sensitivity" I found that there is no evidence on file of the individual chemicals involved at the time that had caused the problem, however the claim was accepted on the basis that Mr Spring was –working for Pellex NZ, processing film, His GP notes indicated this, but also indicated, migraine and asthma (family members suffered asthma). The evidence of chemicals in particular gluieraldehyde/formaldehyde as being the culpnts was introduced to the claim file by Mr Spring in the form of printouts from Ihe internet in 1998. This information has then permeated through The claim via reports trom various specialis! who were provided the information by Case Managers in the course of supplying background material to the claim As a consequence the origional diagnosis "chemical sensitivity" has changed according To Mr and Mrs Spring to impairment and diffuse brain damage". This has been indicated in a xxx report mild. Since then Mrs Spring has commenced to call herself "supervisory caregiveri" to Rocky Spring? and is now signing documents on his behalf i.e. Medical Certificates, consent forms letters etc. This in turn is adding to the confusion on file and attempting to show that Mr Spring is brain damaged, (letter to Insurocorp Fraud Unit attached)<BR/><BR/>And you thought "Silkwood" was just a far fetched story and we is a clean green corruption free country! <BR/><BR/> <BR/> Reminds me of A.A. Milne stories!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-74896714208420176042007-03-10T21:39:00.000+00:002007-03-10T21:39:00.000+00:00General CommentsMr xxx attended this interview wit...General Comments<BR/>Mr xxx attended this interview with his wife, mmmmm. Subsequent to our meeting he provided detailed information from his own records regarding his interactions with Insurocorp and additional medical assessments. He described his history since first becoming aware of the effects of neurotoxicity, outlining the wide range of personal and economic challenges resulting from the variable and specialised nature of his injury. Mr xxx continues to regret the suffering -that inadequate medical assessments and case management have added to the difficulties resulting from his toxic exposure. He considers he is now accepting many aspects of his past and approaching his life in a more careful and successful manner. Mr xxxx considers maintaining a reasonable vocational expectation is essential, recalling times when his wish to challenge himself and the confidence of his employers have led him into risky situations.<BR/>Mr and Mrs xxxx are vigilant regarding the many likely materials and situations that lead to acute episodes of confusion, headache, irritability and fatigue. These episodes occur despite their vigilance, and these are accepted as inevitable if they are to lead a life that approaches a normal family pattern. Both are also familiar with the importance of continuing to problem solve and find successful approaches, having supported family members and pupils who have experienced a range of special health and educational needs. They talk with confidence and satisfaction of the effective strategies they have developed and their commitment to self-management. Positive family relationships and watching the success of their children provide important encouragement for this approach.<BR/>Mr xxxxx identifies fatigue management and maintaining his awareness of priorities through distractions, especially in social settings, as ongoing challenges he wishes to explore during this intervention.....................................................<BR/> <BR/> <BR/> <BR/>Claimant signature.<BR/>Date: 20-1-06.<BR/> <BR/> <BR/> <BR/> <BR/>Case manager flpproual (only required if plan differs from assessment findings or IRP]<BR/> <BR/>Case Manager Signature:;<BR/>Date:<BR/> <BR/> <BR/>The information collected on this form -will only be useado fulfil the requirements of the Injury Prevention, Rehabilitation, and Compensation Act 2001. In the collection, use and storage of information, Insurcorp will at all times comply with the obligations of the Privacy Act 1993 and the Health Information Privacy Code 1994.<BR/>"yer right to the last paragraph!"<BR/><BR/> Meanwhile somewhere Insurocorp claimes I ahd rea dabout the injuries I sufer on the interent and by passing such information to them the diagnosis of my injuries had filtereed through the file tisd all my imgaination folks or ar they in de Nile?<BR/><BR/> Life is as life is!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-19456253257916553422007-03-10T21:35:00.000+00:002007-03-10T21:35:00.000+00:00Maybe I'll post another comment as well. I very mu...Maybe I'll post another comment as well. I very much emphasise with Goldfish, except i find myself in the posititon of having been assessed and reassesed into oblivion.<BR/> How much do people ned to know about you?<BR/><BR/>When is enough enough, especially when the asessments are of no benefit at all to the person assessed?<BR/><BR/> Funny thing is once people have assessed almost evry aspect of your condition they then, I like to think on my behalf, go into aboslute complete denial that anything which has been assesed in you actually assessed.<BR/> Yes i need to post another comment to explain what I mean.<BR/> <BR/> Nowadays in my old age I smile sweetly when some expert says "you don't drive do you?" <BR/><BR/> I reply "I am fine I am fine" and so return to my usual "impossible" daily life while all wournd me the world is in turmoil as to who i really am and what is not wrong with me.<BR/> So long as you enjoy life that's all that matters!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-43264056734582122452007-03-10T20:54:00.000+00:002007-03-10T20:54:00.000+00:00I agree with Charles, but for me it's because peop...I agree with Charles, but for me it's because people tend to think your behaviour towards them is based on their actions or the way you feel about them. They do not understand that the pain you are in is causing you to be emotionally different than before. When I recall the reaction to my illness before I had a diagnosis it ranged from disbelief to being put down as mentally/emotionally unstable. This made things even more frustrating.fluttertonguehttps://www.blogger.com/profile/06503797774392650926noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-78242044386913795752007-03-10T19:48:00.000+00:002007-03-10T19:48:00.000+00:00I think this speaks to the ease with which people ...I think this speaks to the ease with which people discount the experiences of others when the reality of that experiences is discomfiting to them in some way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-48291502372884585472007-03-10T17:11:00.000+00:002007-03-10T17:11:00.000+00:00I think, Goldfish, you are in danger here of makin...I think, Goldfish, you are in danger here of making the old, old mistake of mixing up a need for sympathy and a need for empathy; and not purely empathy at that.<BR/><BR/>A characteristic of acquiring an impairment in adult life is that one has previously acquired a whole network of relationships - personal, emotional, professional - together with their responsibilities and duties.<BR/><BR/>Other people - friends, partners, colleagues, relations, children, parents - have settled into assumptions about one, particularly about what <I>they</I> need from one.<BR/><BR/>Post impairment this all gets changed, even if one outwardly seems not much different. One was reliable; one is no longer so. One was the support, the care- or strength-giver; now one needs the care and support oneself.<BR/><BR/>There are all sorts of complex unspoken negotiations going on all the time between adults, anyway, and illness, pain and its sequelae, impairment of any kind, has to be factored in.<BR/><BR/>It is often <I>essential</I> that other parties be made to understand the reality of the situation, if only in order to keep one's job or preserve a relationship or get help one needs and is entitled to.<BR/><BR/>That's been my experience anyway.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-18931463833629317992007-03-10T09:16:00.000+00:002007-03-10T09:16:00.000+00:00Well, I suppose we tend to define ourselves (to wh...Well, I suppose we tend to define ourselves (to whatever extent) in terms of other people. We are, after all, social creatures.<BR/><BR/>Those close to us and fond of us will often happily accept what is happening. After all, they've <I>seen</I> us having trouble day after day. But those who our interactions are not based on "care" or "friendship" are less likely to make mental space for it. Employers and colleagues, for instance.<BR/><BR/>Like you say, I don't need sympathy and I don't need people to have a complete understanding of my condition, but it rankles when they say I lie.Maryhttps://www.blogger.com/profile/11639094548415759560noreply@blogger.com