tag:blogger.com,1999:blog-10557263.post5530526032323418750..comments2024-01-26T10:20:37.836+00:00Comments on Diary of a Goldfish: Knowledge is PowerThe Goldfishhttp://www.blogger.com/profile/15213378454070776331noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-10557263.post-87417941149118563492007-03-05T02:36:00.000+00:002007-03-05T02:36:00.000+00:00Yes chronic pain destroys, it destroyed me. But t...Yes chronic pain destroys, it destroyed me. But thinking about it for me just made it worse.matthttps://www.blogger.com/profile/15197055315881066042noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-50901631041101735572007-02-27T23:36:00.000+00:002007-02-27T23:36:00.000+00:00Oh yes, yes yes. I often say, to those who questi...Oh yes, yes yes. <BR/>I often say, to those who question: "If I was fit and well and working and all, and then one day I woke up feeling like this (pain, profound fatigue, brain wiped, you know, the usual) I would be very afraid, I would go back to bed, call the doctor, and stay there until s/he did something and I recovered. But after three months I had to get up again ..." <BR/>Thanks Goldfish and commenters.Sallyhttps://www.blogger.com/profile/08223682934383856392noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-71930211501977806372007-02-27T11:52:00.000+00:002007-02-27T11:52:00.000+00:00Thanks everyone.Thanks everyone.The Goldfishhttps://www.blogger.com/profile/15213378454070776331noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-40847473514156568402007-02-26T15:50:00.000+00:002007-02-26T15:50:00.000+00:00Excellent post.Excellent post.IrrationalPointhttps://www.blogger.com/profile/18079777358354337933noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-24805743414401076402007-02-26T02:36:00.000+00:002007-02-26T02:36:00.000+00:00ohhhh. yes. damn good post.WCDohhhh. yes. damn good post.<BR/><BR/>WCDWheelchair Dancerhttps://www.blogger.com/profile/11981313345401954118noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-33145143695842090262007-02-25T23:38:00.000+00:002007-02-25T23:38:00.000+00:00There is a certain degree of comfort in knowing th...There is a certain degree of comfort in knowing that, no, there's nothing deadly going on. That's true. However, it doesn't really matter much to me that my pain is just my brain misreading signals or overreacting to stimuli or whatever the hell it is that it's doing. When I'm in the moment, I just don't care. It hurts. It hurts and I can't sleep and the pills won't work and people look at me and say "But you don't look sick" and I want to stab them in the eyes and say "Oh, but you don't LOOK blind" to see how that makes them feel...<BR/><BR/>When I'm not having a flare up, when it's just the normal amount of pain, sure. I can deal. I can parcel up that bit of pain and just....well, it's there, but it's not everything. <BR/><BR/>I still can't get over this fear that this pain means I'm going to be alone forever. That I'm going to be endlessly in this cycle of feeling wonderful and being happy and then BAM, I'm back in the pit.Zanhttps://www.blogger.com/profile/01086497481509929875noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-64061231207662283282007-02-25T22:00:00.000+00:002007-02-25T22:00:00.000+00:00I will come back to this when my concentration has...I will come back to this when my concentration has improved. I can tell it will be of enormous help to me.seahorsehttps://www.blogger.com/profile/04006649663400552591noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-66977438047720240912007-02-25T19:31:00.000+00:002007-02-25T19:31:00.000+00:00It would be nice if certain people could accept th...It would be nice if certain people could accept that chronic pain exists and indeed prevents people from doing things even when there is no visible injury.<BR/><BR/>My nervous system may be lying to me about the pain, but I am not lying to you about what I am experiencing.<BR/><BR/>Of course the reverse of that is people who see you obviously in pain and having trouble doing things, and can't accept that this is part of daily life, and that a pack of frozen peas/a hot water bottle/a GP appointment/a trip to A&E is Really Not Necessary.Maryhttps://www.blogger.com/profile/11639094548415759560noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-41006434396044325722007-02-25T15:14:00.000+00:002007-02-25T15:14:00.000+00:00chronic pain is so damn debilitating.The brain is ...chronic pain is so damn debilitating.<BR/><BR/>The brain is wired up to take notice of pain signals above all other stimuli, in case there's anything you should be doing about them. So you have to fight twice as hard to concentrate on what else you are doing, or what people or circumstances are trying to tell you.<BR/><BR/>And that's tiring.<BR/><BR/>Chronic pain is so damned irritating.<BR/><BR/>Is there any sufferer who has never been inspired to shout at their own body to Shut the fuck <I>up</I> when the painkillers just won't work.<BR/><BR/>Chronic pain is so damned isolating.<BR/><BR/>Most people can empathize with acute pain, even if they've never suffered anything worse than a tetanus vaccination. The idea that pain goes on and on, maybe with no visible spur, and yes, you <I>have</I> taken the tablets, is just incomprehensible and eventually boring.<BR/><BR/>Chronic pain just <I>is</I>, that's the trouble with it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10557263.post-17566151086778053692007-02-25T15:11:00.000+00:002007-02-25T15:11:00.000+00:00I'm sorry, Fluttertongue, that you're in the place...I'm sorry, Fluttertongue, that you're in the place you are just now.<BR/><BR/>It <I>is</I> normal to cry when it hurts. It is also normal to be made far more emotionally volatile by being tired and in pain, such that the tears come easily whatever brought them on.The Goldfishhttps://www.blogger.com/profile/15213378454070776331noreply@blogger.comtag:blogger.com,1999:blog-10557263.post-61909258392039948782007-02-25T13:19:00.000+00:002007-02-25T13:19:00.000+00:00Knowledge is indeed comforting although it can be ...Knowledge is indeed comforting although it can be distressing when you are hurting and everyone tells you that there is nothing wrong. I'm just not that trusting of their knowledge. Some of those close to me assume that I must be used to the pain by now. But it hurts as much as it did the first time - that is the nature of pain, it is there to be noticed. When I am busy, stable pain is less noticable, but slowly it becomes unbearable and there is no promise that it will ever end. It still makes me cry - people assume I have emotional instability, but surely it is normal to cry when it hurts. It keeps happening. I'm not used to it.fluttertonguehttps://www.blogger.com/profile/06503797774392650926noreply@blogger.com